Showing posts with label Lyme disease. Show all posts
Showing posts with label Lyme disease. Show all posts

Thursday, October 30, 2008

Please - do this for Abbey


Today, one of our own needs you all to become pro-active. Last week Robert Stokely sent an email out to the blogosphere. Many of us know and love the Stokely family. The Stokely family has already given much to America. Robert and Retta have already lived every parent's worse nightmare. Please read Robert's email below. I need you all to make a few simple phone calls. That - and pray. Please, do this - for Abbey. Thank you.

The Stokely's need your help as does many many others around the country to get Congress to act - please see the links below to versions of the U.S. House and Senate bills for Lyme Disease Research below:

Lyme and Tick-Borne Disease Prevention, Education, and Research Act of 2007 (Introduced in House)[H.R.741.IH]

Lyme and Tick-Borne Disease Prevention, Education, and Research Act of 2007 (Introduced in Senate)[S.1708.IS]

Abbey Stokely was bitten by a tick about 20 months ago. We have been to doctors - the best we can find and she is very sick to this day and I fear she may even die. Yesterday, as a home health nurse came to treat her under the orders of an infectious disease doctor, she suddenly collapsed, stopped breathing and then responded again. I buried a son, SGT Mike Stokley KIA 16 AUG Yusufiyah Iraq and that nearly did it for me. I don't think I can bury a daughter, much less I know my wife Retta can't, for like Mike and I were best friends, Retta and Abbey are the closet mother / daughter I have ever known, and on top of that, they have the closet friendship I have ever seen in my life.

The other day, Abbey became so ill and fatigued at school that a friend had to bring her home from school. We, like many other families, are desparate. We nearly lost Abbey in a car wreck five months after Mike died when she and I were struck in her door, sheering it away, by another car running a stop sign. We rolled and then flipped end over end for 180 feet. We spent 18 months gettng Abbey well from that wreck.

It was during that recovery time that Abbey was bitten by the tick. Since then she has had to endure something no emerging teenager wants - to have your life taken away and unable to be with your friends. Going to church is a struggle, yet her faith and committment to God leads her to save up her strength to go to church for an hour. She went to school half days, not even going other days. Amazingly, she maintained the high straight A average she has had everyday of her entire school career, and moved from 15th in her class to 4th (and she is in a very competetive 2010 class).

We understood and accepted what we were in for when Mike went to Iraq. Yet, his death continues to be a heart break to us every day. While other thirteen year old girls might have attended their first funeral to bury a grandparent, Abbey attended her first to bury a treasured and loved brother in a most public setting, TV cameras and Reporters in her face at the State Capitol prayer service, and then again as over a thousand attended Mike's funeral. Instead of a simple graveside service and prayer to get through for a grandparent, Abbey said goodbye to her brother to the report of a 21 gun salute, watching the flag draping his casket be folded, and then the playing of taps.

There are a lot of unknowns about Lyme Disease and a lot of "blowing off" of patients like Abbey and our family by the medical community. Some doctors have even had their license taken away or suspended because traditioanl medical community views tend to discount Lyme even exists in many states or that the regimen of treatment is two weeks of an anitbiotic and the patient is cured, and if not, they are depressed and need a psychiatrist.

If what I describe above is not enough for Abbey to go through from age 13 - to 16, she has had to endure going through every known medical test and being told we don't know what you have, but it is not Lyme Disease because Lyme does not exist in GA and you are just depressed because of what has happened in your life. Such is how it goes for many others like Abbey Stokely - they are blamed for not getting better and told there is nothing wrong with them.

Abbey Stokely wants to get better, she wants to live a full life, and she wants to be happy. Yet, in the face of the the physical setback of Lyme Disease and only able to go to school half days, some days not at all, she carried a full advanced placement high school load, elected to be the President of her Student Government, doing homework on weekends when her friends are out having fun so she can maintain her lifelong high straight A average. She is in a very competetive academic class of 2010 at her high school and has managed to achieve being ranked 4th in her class. She continues a strong faith in God even given what has befallen her, continuing to read and study her bible and carry on a committed prayer life. She is respectful and considerate of the needs of others even to the point the other day when she was rear-ended by another driver, and hurt again, she was more worried about how they were than her own self, and now worries if the other driver will get in much trouble with their parents and insurance company. She is chaste and would not dare consider a drink or illegal drug. She saves her allowance for college and dreams of being a doctor or doing something to contribute to the betterment of life for others. She was trying to walk several miles a day and build up strength to walk in the three day breast cancer walk and had raised considerable money to donate to the Susan Komen Breast Cancer Foundation by making crafts to sell and holding late night dinners for the staff at her mom's hospital. Does that sound like someone who is depressed and needs a psychiatrist?

Abbey Stokely is sick and could die from Lyme Disease. Now, we as a family need your help.

Congress has two bills pending - one in the House and one in the Senate - links above and for a tenth straight year will die if not passed out of Congress in December. We need to look at this disease and study it with an open mind and not take the hasty and closed minded positions as those with a conflict of interest due to ties in the research and pharmacuetical field have. A video "Under Our Skin" which is gripping and compelling to ask questions why not study and learn more rather than misdiagnois or outright ignore the problem. A legitimate question exists why the medical community, including CDC, is not responding and families like us, and people like Abbey, are being left with no answers, even being shunned and blamed with "the problem". Please help us and the many many others like us around our country.

I am not one who shows fear but I am really scarred for my daughter. Please guard your family from ticks, for Lyme Disease, while recognized as a disease in some states on the eastern seaboard from Maryland north, there are many states it exists in great numbers like Georgia but is ignored by health authorities. Remember, thirty years ago no one had heard of Lyme Disease until it was discovered by a doctor who studied the unusual onset of child hood arthritis in large numbrs of children in Lyme Conneticut. While the medical community blames the patient in many cases today, or misdiagnosis the patient altogether, we are very likely to look back one day and ask ourselves as a nation who we could have ignored it for so long and let so many suffer needlessly.

Thank you my friends for any contacts you can make and please share this with your friends if you like.

Robert Stokely
proud dad SGT Mike Stokely KIA 16 Aug 05 near Yusufiyah Iraq
and proud but very concerned dad of Abbey Stokely, suffering from Lyme Disease
My signature on SA says: Every soldier is one of our own. Every soldier's family is one of our own.

One of our own needs you to take the few minutes and call. Thank you.

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The Veterans Hospital in Tucson needs our help!!! They have contacted Soldiers' Angels with a list of needs for their patients. Soldiers Angels needs your help in making some of these come true.

Below you will find just a small portion of needs that are immediate. You can also find this list posted on the Soldiers Angels Forum at www.soldiersangelsforum.com you will be able to find lots of great information there for our deployed and vets.

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Dry Skin Cream
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Catheter bag covers
Shaving Cream
Hand Lotion
Baby Shampoo
Hand Soap
Roll on/Spray Deodorant
Denture Cleaner
Underwear (men and women (all sizes)
Toothbrushes
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Talcum Powder
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Balls, badminton set, Frisbees, football)

If you can send just one item that would be great!!! If each person sends one thing we will make a difference! They are also needing those who can volunteer time at the hospital just contact the Voluntary Services Dept. For information.

Mail Items to:

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My Favorite Speeches and Other Items of Interest

  • George Bush's March 28, 2007 Discusses Economy, War on Terror During Remarks to the National Cattlemen's Beef Association;http://www.whitehouse.gov/news/releases/2007/03/20070328-2.html
  • Mitch McConnell's March 15, 2007 Funding For Troops, Not Timelines for Retreat; http://mcconnell.senate.gov/record.cfm?id=270747&start=1
  • Ronald Reagan's June 12, 1987 Tear Down This Wall Speech; http://www.reaganfoundation.org/reagan/speeches/wall.asp
  • Vice President Cheney's March 12, 2007 Remarks at the AIPAC 2007 Policy Conference; http://www.whitehouse.gov/news/releases/2007/03/20070312.html

Winston Churchill Quotes

  • A prisoner of war is a man who tries to kill you and fails, and then asks you not to kill him.
  • Although personally I am quite content with existing explosives, I feel we must not stand in the path of improvement.
  • Although prepared for martyrdom, I preferred that it be postponed.
  • Attitude is a little thing that makes a big difference.
  • Battles are won by slaughter and maneuver. The greater the general, the more he contributes in maneuver, the less he demands in slaughter.
  • Danger - if you meet it promptly and without flinching - you will reduce the danger by half. Never run away from anything. Never!
  • I always seem to get inspiration and renewed vitality by contact with this great novel land of yours which sticks up out of the Atlantic.
  • I am an optimist. It does not seem too much use being anything else.
  • I have nothing to offer but blood, toil, tears and sweat.
  • I like a man who grins when he fights.
  • I was only the servant of my country and had I, at any moment, failed to express her unflinching resolve to fight and conquer, I should at once have been rightly cast aside.
  • If you have an important point to make, don't try to be subtle or clever. Use a pile driver. Hit the point once. Then come back and hit it again. Then hit it a third time-a tremendous whack.
  • In war as in life, it is often necessary when some cherished scheme has failed, to take up the best alternative open, and if so, it is folly not to work for it with all your might.
  • It is no use saying, 'We are doing our best.' You have got to succeed in doing what is necessary.
  • Moral of the Work. In war: resolution. In defeat: defiance. In victory: magnanimity. In peace: goodwill.
  • Never in the field of human conflict was so much owed by so many to so few.
  • Never, never, never give up.
  • No folly is more costly than the folly of intolerant idealism.
  • One ought never to turn one's back on a threatened danger and try to run away from it. If you do that, you will double the danger. But if you meet it promptly and without flinching, you will reduce the danger by half. Never run away from anything. Never!
  • Socialism is a philosophy of failure, the creed of ignorance, and the gospel of envy, its inherent virtue is the equal sharing of misery.
  • Success is not final, failure is not fatal: it is the courage to continue that counts.
  • The first quality that is needed is audacity.
  • The nose of the bulldog has been slanted backwards so that he can breathe without letting go.
  • The truth is incontrovertible, malice may attack it, ignorance may deride it, but in the end; there it is.
  • There is no such thing as public opinion. There is only published opinion.
  • These are not dark days: these are great days - the greatest days our country has ever lived.
  • They are decided only to be undecided, resolved to be irresolute, adamant for drift, solid for fluidity, all-powerful to be impotent.
  • True genius resides in the capacity for evaluation of uncertain, hazardous, and conflicting information.
  • Victory at all costs, victory in spite of all terror, victory however long and hard the road may be; for without victory, there is no survival.
  • War is a game that is played with a smile. If you can't smile, grin. If you can't grin, keep out of the way till you can.
  • War is mainly a catalogue of blunders.
  • We shall defend our island, whatever the cost may be, we shall fight on the beaches, we shall fight on the landing grounds, we shall fight in the fields and in the streets, we shall fight in the hills; we shall never surrender.
  • We shall draw from the heart of suffering itself the means of inspiration and survival.
  • When the eagles are silent the parrots begin to jabber.
  • When you are winning a war almost everything that happens can be claimed to be right and wise.
  • You have enemies? Good. That means you've stood up for something, sometime in your life.

Ronald Reagan Quotes

  • "The trouble with our liberal friends is not that they're ignorant: It's just that they know so much that isn't so."
  • Above all, we must realize that no arsenal, or no weapon in the arsenals of the world, is so formidable as the will and moral courage of free men and women. It is a weapon our adversaries in today's world do not have.
  • All the waste in a year from a nuclear power plant can be stored under a desk.
  • Approximately 80% of our air pollution stems from hydrocarbons released by vegetation, so let's not go overboard in setting and enforcing tough emission standards from man-made sources
  • Come here to this gate! Mr. Gorbachev, open this gate! Mr. Gorbachev, tear down this wall!
  • Concentrated power has always been the enemy of liberty.
  • Double, no triple, our troubles and we'd still be better off than any other people on earth. It is time that we recognized that ours was, in truth, a noble cause.
  • Facts are stupid things.
  • Freedom is never more than one generation away from extinction. We didn't pass it to our children in the bloodstream. It must be fought for, protected, and handed on for them to do the same.
  • Freedom prospers when religion is vibrant and the rule of law under God is acknowledged.
  • Government exists to protect us from each other. Where government has gone beyond its limits is in deciding to protect us from ourselves.
  • Governments tend not to solve problems, only to rearrange them.
  • History teaches that war begins when governments believe the price of aggression is cheap.
  • How can a president not be an actor?
  • How do you tell a communist? Well, it's someone who reads Marx and Lenin. And how do you tell an anti-Communist? It's someone who understands Marx and Lenin.
  • I have wondered at times what the Ten Commandments would have looked like if Moses had run them through the US Congress.
  • I will stand on, and continue to use, the figures I have used, because I believe they are correct. Now, I'm not going to deny that you don't now and then slip up on something; no one bats a thousand.
  • In Israel, free men and women are every day demonstrating the power of courage and faith. Back in 1948 when Israel was founded, pundits claimed the new country could never survive. Today, no one questions that. Israel is a land of stability and democracy in a region of tryanny and unrest.
  • Let us ask ourselves; "What kind of people do we think we are?".
  • Man is not free unless government is limited.
  • My philosophy of life is that if we make up our mind what we are going to make of our lives, then work hard toward that goal, we never lose - somehow we win out.
  • No mother would ever willingly sacrifice her sons for territorial gain, for economic advantage, for ideology.
  • Of the four wars in my lifetime, none came about because the U.S. was too strong.
  • Our forbearance should never be misunderstood. Our reluctance for conflict should not be misjudged as a failure of will. When action is required to preserve our national security, we will act.
  • Protecting the rights of even the least individual among us is basically the only excuse the government has for even existing.
  • Some people wonder all their lives if they've made a difference. The Marines don't have that problem.
  • The ultimate determinant in the struggle now going on for the world will not be bombs and rockets but a test of wills and ideas - a trial of spiritual resolve: the values we hold, the beliefs we cherish and the ideals to which we are dedicated.
  • The United Sates has much to offer the third world war.
  • There are no easy answers' but there are simple answers. We must have the courage to do what we know is morally right.
  • To paraphrase Winston Churchill, I did not take the oath I have just taken with the intention of presiding over the dissolution of the world's strongest economy.
  • Today we did what we had to do. They counted on America to be passive. They counted wrong.
  • We are never defeated unless we give up on God.
  • We have the duty to protect the life of an unborn child.
  • We must reject the idea that every time a law's broken, society is guilty rather than the lawbreaker. It is time to restore the American precept that each individual is accountable for his actions.
  • We will always remember. We will always be proud. We will always be prepared, so we will always be free.
  • Within the covers of the Bible are the answers for all the problems men face.
  • You know, if I listened to Michael Dukakis long enough, I would be convinced we're in an economic downturn and people are homeless and going without food and medical attention and that we've got to do something about the unemployed.

Eleanor Roosevelt Quotes

  • No one can make you feel inferior without your consent

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